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Home Safety Hazards vs Respecting Wishes of Elderly or Disabled People
POST a QUESTION or COMMENT about home safety hazards of particular concern to senior citizens, the elderly, and people with disabilities
Safety compromises: how do we balance the wish to keep elderly or frail people safe against their wishes for independence or their desire to remain in their home? This article uses a practical example to illustrate the difficulty of responding to unsanitary or unsafe conditions in the home of some people. Page top photo: the author's mother (right) with her care giver.
This article series explains special home safety concerns for the elderly and for disabled people, offering suggestions for safety inspections and for obtaining financial aid to perform necessary home safety or home accessibility improvements.
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Balancing Safety for the Elderly with Individual Preferences, Fears, Desires
Reader Question: what to do about a very moldy home & unsanitary occupied by an elderly person
First off I should let you know that this is a house not an office building, just in case that makes a difference. I'll try and keep this as short as I can, the house belongs to my 88 year old grandmother, my cousin also lives in the house.
Over the years they had started keeping family members from coming to the house, they would come out but would not let anybody come to the house to see her. She recently got sick and had to have surgery on her legs and while she was in the hospital, some of the family members got into the house.
The mold smell was horrible, what we found were visible signs of mold, what type I don't know. Mold on carpet where water had run under a door for who knows how long, leaking sink drains with rotten wood below them, a room that had been flooded and not cleaned up properly, a basement that has a broken window and has allowed cats to come and go as they please with animal urine and feces all over the floor, another room that was so bad with animal feces and urine that we couldn't even go into it, reports of mice that had been running in the ceilings and had probably died, a leaking room and lastly a laundry room with leaking spouts that has soaked the wall and wood.
Although we have tried to convince my grandmother that the house if full of mold and she can't go back to it, she will not listen. We are trying to educate ourselves the best we can on mold and what we should do next. Any advice would be appreciated.
Reply: dealing with hoarding disorder, mold contamination, animal feces and urine, and probably other life-safety hazards where an elderly person is involved.
OPINION
You are describing a combination of several concerns: an elderly person who has a hoarding disorder and a building that is unsanitary due to animal feces (and probably urine), a high level of indoor mold contamination, and I fear that there are quite possibly other un-discovered life-safety hazards such as fire hazards, heating equipment ventilation and carbon monoxide hazards, and multiple trip and fall hazards: in my experience where someone suffers from a form of hoarding disorder, often there is a combined history of inattention to or lack of recognition of the other life-safety risks I name.
Balancing Respect & Concern for the Elderly with Immediate Life Safety Hazards
Where the building occupant is elderly additional sensitive issues pertain: working for the Red Cross in LA after the Northridge earthquake I was asked to advise a response for cases in which caregivers or family were balancing concern for the immediate life-safety issues that confronted an elderly family member against the risks to a fragile, frightened family member who was terrified at the prospect of having to stay in a shelter or being forcibly removed from their home.
There was no single "right answer". Some responders, fearing getting in trouble themselves, gave what they thought was an answer that was safest for themselves rather than best for the people involved. I did not always agree with that answer, but remain reluctant to ever judge the decisions of experts who are on the scene of a disaster.
Quickly Determine Immediate and Severe, Obvious Hazards, Mold or Others
Usually in the case of a building in the condition you describe, a visual inspection for the extent of visible mold and other hazards is more than enough to determine the safety of living in the space. Especially where most of the house is involved and contaminated, testing is not particularly helpful nor likely to be justified. (While there are some cosmetic molds, they don't appear on drywall, carpet, and many other surfaces.)
See HOARDING HAZARDS for a description of and research about types of hoarding in buildings and safety and health hazards associated with that behaviour.
Added to the mold contamination you mention animal urine and feces which in turn, in my experience form a bacterial and viral hazard.
Especially for an elderly person whose health is likely to be more fragile, such an environment is likely to be dangerous.
For purposes of bringing in an independent, credible expert, if your health department has people with experience in these hazards it may be sufficient to ask for a look and opinion from them. Explain your concerns and needs and expect cooperation.
For purposes of deciding what to do with the property and what can be economically salvaged, you need an onsite inspection by an expert. That inspection should focus on determining the scope of demolition and cleaning needed - thus the scope of work, and it should be performed by someone who has absolutely no business nor financial relationship with a cleaning company who may be hired to do the work.
Typically hard-surfaced items are easy to clean and salvage; wall to wall carpets, heavy upholstered furniture, etc. may be beyond economical salvage if those are moldy or urine/feces soiled.
Clothing and bedding (but not a moldy mattress or pillow) can be laundered or dry cleaned.
Even after that work it may be difficult to get rid of mold and animal odors without further demolition, cleaning, and sealing of remaining structural surfaces beyond that required just based on visible mold.
We can cross that bridge when we come to it.
I understand how badly your grandmother may want to return to familiar surroundings, and I've personally suffered through the issues around arranging care for a family member who vehemently wanted to be left alone.
Nevertheless, and recognizing that no one can accurately inspect a building by email, nonetheless, from your description I'd keep my grandmother out of such an environment.
Ethics & Elder Safety - References
In addition to the citations at x, here are some useful references on the ethics & issues of home safety for the elderly or disabled
McShane, R., T. Hope, and Judith Wilkinson. "Tracking patients who wander: ethics and technology." The Lancet 343, no. 8908 (1994): 1274.
Odenheimer, Germaine L., Marie Beaudet, Alan M. Jette, Marilyn S. Albert, Laura Grande, and Kenneth L. Minaker. "Performance-based driving evaluation of the elderly driver: safety, reliability, and validity." Journal of Gerontology 49, no. 4 (1994): M153-M159.
Runciman, Bill, Alan Merry, and Merrilyn Walton. Safety and ethics in healthcare: a guide to getting it right. Ashgate Publishing, 2007.
Ståhl, Agneta, Gunilla Carlsson, Pia Hovbrandt, and Susanne Iwarsson. "“Let’s go for a walk!”: identification and prioritisation of accessibility and safety measures involving elderly people in a residential area." European Journal of Ageing 5, no. 3 (2008): 265-273.
Zhang, Guicheng, Andy H. Lee, Hoe C. Lee, and Michael Clinton. "Fire safety among the elderly in Western Australia." Fire safety journal 41, no. 1 (2006): 57-61.
Zwijsen, Sandra A., Alistair R. Niemeijer, and Cees MPM Hertogh. "Ethics of using assistive technology in the care for community-dwelling elderly people: An overview of the literature." Aging & Mental Health 15, no. 4 (2011): 419-427.
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In addition to any citations in the article above, a full list is available on request.
McShane, R., T. Hope, and Judith Wilkinson. "Tracking patients who wander: ethics and technology." The Lancet 343, no. 8908 (1994): 1274.
Odenheimer, Germaine L., Marie Beaudet, Alan M. Jette, Marilyn S. Albert, Laura Grande, and Kenneth L. Minaker. "Performance-based driving evaluation of the elderly driver: safety, reliability, and validity." Journal of Gerontology 49, no. 4 (1994): M153-M159.
Runciman, Bill, Alan Merry, and Merrilyn Walton. Safety and ethics in healthcare: a guide to getting it right. Ashgate Publishing, 2007.
Ståhl, Agneta, Gunilla Carlsson, Pia Hovbrandt, and Susanne Iwarsson. "“Let’s go for a walk!”: identification and prioritisation of accessibility and safety measures involving elderly people in a residential area." European Journal of Ageing 5, no. 3 (2008): 265-273.
Zhang, Guicheng, Andy H. Lee, Hoe C. Lee, and Michael Clinton. "Fire safety among the elderly in Western Australia." Fire safety journal 41, no. 1 (2006): 57-61.
Zwijsen, Sandra A., Alistair R. Niemeijer, and Cees MPM Hertogh. "Ethics of using assistive technology in the care for community-dwelling elderly people: An overview of the literature." Aging & Mental Health 15, no. 4 (2011): 419-427.
Dan Haydon, is a professional home inspector in Phoenix AZ. Mr. Haydon can be reached at nahidan@msn.com 9 July 2009
"Technologies Help Adult Children Monitor Aging Parents," Hilary Stout, Hilary Stout, New York Times, July 28, 2010, The New York Times, online edition web search: 1 August 2010 . This article is re-printed at the AARP website
AARP American Association of Retired People, provides reprint of the Times article above: http://www.aarp.org/home-garden/home-improvement/news-07-2010/technologies_help_adult_children_monitor_aging_parents.html
Aware Home, research initiative, Georgia Tech University, experimental house instrumented with monitors. Web search 08/03/2010 original source: http://awarehome.imtc.gatech.edu/about-us The Aware Home Research Initiative at Georgia Institute of Technology is devoted to the multidisciplinary exploration of emerging technologies and services based in the home. Starting in 1998, our collection of faculty and students has created a unique research facility that allows us to simulate and evaluate user experiences with off-the-shelf and state-of-the-art technologies. With specific expertise in health, education, entertainment and usable security, we are able to apply our research to problems of significant social and economic impact.
BeClose all-wireless monitoring system, BeClose, 8150 Leesburg Pike, Suite 1401, Vienna, VA 22182,
Phone: 866-574-1784, Fax: 703-651-3090, Email: info@BeClose.com, Website: http://beclose.com/ . "All-wireless" means that the BeClose monitoring system can be installed without running wires through the home. BeClose uses wireless sensors to gather information about what's going on in the home. Our sensors give you much more information than a video camera can - they tell you exactly when Mom got out of bed or Dad went out for his walk, and you can see the information in real time on a website wherever you are. Then you can set up alerts to call or text you if something is out of the ordinary, so you can customize it exactly to fit your needs.
General Electric Co. - range of monitoring systems, sensors, General Electric Company, 3135 Easton Turnpike Fairfield CT 06828,Phone: +1 (203) 373-2211, Fax: +1 (203) 373-3131 GE website: http://www.ge.com/index.html Quiet Care: Home Health Monitoring Fact Sheet from GE - Document (PDF), web-search 08/03/2010 original source: http://www.genewscenter.com/Resource-Library/Home-Health-Monitoring-Fact-Sheet-7c0.aspx Home health monitoring holds the potential to help seniors live independently longer and in better health, and to reduce the long-term costs of care.
Activity and behavioral monitoring, also known as telecare, uses wireless sensor-based systems and software to
passively track the daily activity patterns of seniors, alerting care givers to potential problems, while at the same time
maintaining privacy and enabling as great a degree of independence as possible.
GrandCare, GrandCare Systems LLC - 2412 West Washington - West Bend, WI 53095 (262)-338-6147. The GrandCare system allows families to place movement sensors throughout a house. Example monitoring system installation and monitoring costs: $8,000. installation + $75./month. Website: http://www.grandcare.com/ Quoting: Using a combination of remote environmental sensing, passive physiological sensing, artificial intelligence, and networking technologies, Grandcare Systems allows the caregiver to remotely and passively monitor a loved-one without compromising dignity or privacy. This reduces caregiver stress by providing peace of mind all around. GrandCare recognizes the importance of an active body, mind & soul by simultaneously addressing the loneliness and social isolation associated with aging. Family can easily stay connected by virtually sending communications to the loved one’s TV or TouchScreen.
Housing Safety Checklist for Older People, Sara D. Kirby, Extension Housing Specialist, North Carolina Cooperative Extension Service, North Carolina A&T State University Cooperative Extension, 04/04 [Distributed in furtherance of the acts of Congress of May 8 and June 30, 1914.] Web Search 02/27/2011, original source: http://www.ces.ncsu.edu/depts/fcs/pdfs/FCS-461.pdf
iReminder provides healthcare messaging and medication reminder support. iReminder.com, Westfield, N.J. 1-877-326-3293 Privacy note: iReminder’s Technology is HIPAA compliant. Quoting: iReminder is a healthcare technology focused on improving medication adherence and persistence. Its products are: Compliance for Life™ for appointment and dosing reminders, Persistent RefillsSM for refill reminders, Global e-TrialsSM for patient recruitment and retention in clinical trials, and MedTriggerSM for virtual coaching. All are patient-centric, personalized and flexible. Reminders and messages are delivered by phone, email and/or SMS text, according to the patient's preferences, in the U.S. and internationally in any language and alphabet. Messages are recorded by native speakers and all written communications (email and SMS text) display in the patient’s preferred language. Patients do not need any special equipment to receive messages.
MedMinder medication management system, MedMinder, 716 Beacon St, Suite 590218, Newton, MA 02459,
Phone: 1-888-MED-MIND (1-888-633-6463), Fax: 1-888-647-8595, Email: info@medminder.com, Website: https://www.medminder.com MedMinder provides patient reminders to take medication, remote monitoring, and medication refill support. Quoting: Maya is equipped with wireless technology that updates MedMinder's central computer about the patient's dosage activity. This information is available, over the web, for caregivers who can also receive immediate email or text messages notifications and weekly reports.
You or your caregiver can easily program Maya and customize preferences remotely via the Internet. You can also call MedMinder and we will do this for you. At the patient's home, there is no need for a computer, phone line, wireless router or any other form of Internet access.
QuietCare sensor monitoring systems track ADL (activities of daily living, such as getting out of bed, safe navigation of the bathroom, eating, taking medications, overall activity, sleep quality. Also see General Electric. Tel: 866-216-4600, email: contact@quietcaresystems.com. Website: https://www.quietcaresystems.com or Website for the UK: http://www.quietcaresystems.co.uk/index_alt.htm
Quoting: QuietCare functions as a 24 hour-a-day, seven-day-a-week early detection and early warning system that lets caregivers and family members know that a loved one is safe. It recognizes emerging problems before they become emergencies. The system utilizes small, unobtrusive, strategically-placed wireless sensors to monitor the senior in their own home. It is virtually invisible. No video camera or audio intrudes on the seniors' lives.
Small, wireless motion sensors are strategically placed in key areas, including the senior's bedroom, kitchen, bathroom, and meal prep and/or medication areas.
Each sensor transmits information 24 hours a day, 7 days a week about the senior's daily living activities to a book-sized base station.
The base station gathers this information and regularly transmits it to QuietCare's computers, using existing telephone lines.
Changes in the senior's activities are analyzed so caregivers can be alerted to problems by call center professionals, or via e-mail, cell phone, text message or pager, or by checking a password-protected web site
Selfhelp Selfhelp Community Services, Inc., 520 Eighth Avenue, New York, NY 10018, 866.735.1234, Website: http://www.selfhelp.net/ SelfHelp is a social services company helps seniors use technology to live independently. Selfhelp provides on-site social services (New York) and senior centers. Quoting: Our progressive social services, innovative aging-in-place solutions and cutting edge client centered technologies ensure that you will be independent, safe and secure.
Senior Source, our comprehensive and personal private care management program, gives you access to the full range of Selfhelp’s services. Senior Source can enable you to manage your immediate senior care needs and plan for your future today.
Thanks to Senior Source, you’ll have a Care Concierge offering you access to outstanding services and affordable solutions for your later years.
Selfhelp’s commitment to secure independent living for seniors is evident in our six, award-winning housing complexes serving more than 1,000 low and moderate-income seniors. Our six senior centers provide programs that enrich the lives of over 6,000 older New Yorkers and our four Naturally Occurring Retirement Communities (NORCs) offer residents extensive on-site care services. Costs: Some of our services are free, some are covered by insurance, Medicaid or Medicare, some require for a small contribution and some are paid privately by the client. In all cases, our professional and caring staff members work with you to navigate the complex and often daunting maze of governmental, legal and financial regulations surrounding benefits and entitlements. Our goal is to ensure that you receive the services you need and the benefits to which you are entitled.
Our recommended books about building & mechanical systems design, inspection, problem diagnosis, and repair, and about indoor environment and IAQ testing, diagnosis, and cleanup are at the InspectAPedia Bookstore. Also see our Book Reviews - InspectAPedia.
"Are Functional Handrails Within Our Grasp" Jake Pauls, Building Standards, January-February 1991
Access Ramp building codes:
UBC 1003.3.4.3
BOCA 1016.3
ADA 4.8.2
IBC 1010.2
Access Ramp Standards:
ADA (Americans with Disabilities Act), Public Law 101-336. 7/26/90 is very often cited by other sources for good design of stairs and ramps etc. even where disabled individuals are not the design target.
ANSI A117.4 Accessible and Usable buildings and Facilities (earlier version was incorporated into the ADA)
ASTM F 1637, Standard Practice for Safe Walking Surfaces, (Similar to the above standards)
Falls and Related Injuries: Slips, Trips, Missteps, and Their Consequences, Lawyers & Judges Publishing, (June 2002), ISBN-10: 0913875430 ISBN-13: 978-0913875438 "Falls in the home and public places are the second leading cause of unintentional injury deaths in the United States, but are overlooked in most literature. This book is unique in that it is entirely devoted to falls. Of use to primary care physicians, nurses, insurance adjusters, architects, writers of building codes, attorneys, or anyone who cares for the elderly, this book will tell you how, why, and when people will likely fall, what most likely will be injured, and how such injuries come about. "
Slips, Trips, Missteps and Their Consequences, Second Edition, Gary M. Bakken, H. Harvey Cohen,A. S. Hyde, Jon R. Abele, ISBN-13: 978-1-933264-01-1 or
ISBN 10: 1-933264-01-2, available from the publisher, Lawyers & Judges Publishing Company,Inc., www.lawyersandjudges.com sales@lawyersandjudges.com
The Stairway Manufacturers' Association, (877) 500-5759, provides a pictorial guide to the stair and railing portion of the International Residential Code. [copy on file as http://www.stairways.org/pdf/2006%20Stair%20IRC%20SCREEN.pdf ] -
Slips, Trips, Missteps and Their Consequences, Gary M. Bakken, H. Harvey Cohen, Jon R. Abele, Alvin S. Hyde, Cindy A. LaRue, Lawyers and Judges Publishing; ISBN-10: 1933264012 ISBN-13: 978-1933264011
Slips, Trips, Missteps and Their Consequences, Second Edition, Gary M. Bakken, H. Harvey Cohen,A. S. Hyde, Jon R. Abele, ISBN-13: 978-1-933264-01-1 or ISBN 10: 1-933264-01-2, available from the publisher, Lawyers & Judges Publishing Company,Inc., www.lawyersandjudges.com sales@lawyersandjudges.com
Steps and Stairways, Cleo Baldon & Ib Melchior, Rizzoli, 1989.
The Staircase, Ann Rinaldi
Common Sense Stairbuilding and Handrailing, Fred T. Hodgson
The Art of Staircases, Pilar Chueca
Building Stairs, by pros for pros, Andy Engel
A Simplified Guide to Custom Stairbuilding, George R. Christina
Basic Stairbuilding, Scott Schuttner
The Staircase (two volumes), John Templar, Cambridge: the MIT Press, 1992
The Staircase: History and Theories, John Templar, MIT Press 1995
Steps and Stairways, Cleo Baldon & Ib Melchior, Rizzoli, 1989.
"The Dimensions of Stairs", J. M. Fitch et al., Scientific American, October 1974.
"Are Functional Handrails Within Our Grasp" Jake Pauls, Building Standards, January-February 1991
In addition to citations & references found in this article, see the research citations given at the end of the related articles found at our suggested
Carson, Dunlop & Associates Ltd., 120 Carlton Street Suite 407, Toronto ON M5A 4K2. Tel: (416) 964-9415 1-800-268-7070 Email: info@carsondunlop.com. Alan Carson is a past president of ASHI, the American Society of Home Inspectors.
Carson Dunlop Associates provides extensive home inspection education and report writing material. In gratitude we provide links to tsome Carson Dunlop Associates products and services.